Teen Was Called A Drama Queen When She Complained Of Pain, But 7 Years Later She'S Diagnosed

Teen Was Called A Drama Queen When She Complained Of Pain, But 7 Years Later She'S Diagnosed

Science is a truly marvelous thing, but it would be wrong to say we know everything about the workings of the world.

This is very much the case when it comes to medicine. Some illnesses are thankfully simple: they’re diagnosed, treated, and cured. But others are far more complicated.

Emma Maxwell knows all too well what’s it’s like to suffer from a complicated illness.

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hey there! I’ve seen quite a few new followers on here, so I wanted to take a moment to introduce myself & learn about you! -I am 21 years old and live in New Hampshire. -I was diagnosed with endometriosis in September of 2019. -I’m an obsessive plant mom -I coach HS lacrosse and field hockey -Chocolate is my weakness -I love to spend my time outside hiking with my boyfriend when my body allows me to -I have such baby fever (but I’ll stick to babysitting for now) -I’d like to think I’m hilarious (i did win funniest in 8th grade after all…) 🤣😅 -Some days I have to use a cane to walk because my body needs the help What are 3 things about you?! #endometriosis #endo #endoawareness #endowarrior #period #disability #invisibleillness #invisibledisability #disabilityawareness #chronicillness #chronicpain #pain #women #womensupportingwomen #womenwithendometriosis #womenwithendo #endotough #supportivecommunity #endocommunity #healing #healingjourney #sickgirlsclub #butyoudontlooksick #youdontlooksick #loveyourself #loveyourbody #woman #womanpower

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She spent 7 years in pain, while doctors told her that, as a young woman, she had a lower pain tolerance, and that she was just being a “drama queen”.

Emma’s nightmare began in her early teens, when she started to experience pain in her lower back, pelvis and rectum. She experienced heavy periods, constipation, bloating, and nausea.

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Feeling VERY vulnerable posting these publicly but here is my Endo belly. You never see it because I typically wear baggy sweatshirts and leggings (since all of that won’t fit into jeans). I never know when I’m going to have a flair up, which used to give me the most anxiety. My belly has made me ashamed at who I’d look at in the mirror. I’d cry and cry at the sight of myself. But guess what, I finally accept my bloated belly and you should too! Stressing about things we can’t change does us no good. Love and accept yourself and I promise you’ll be a happier person! #endometriosis #endometriosisawareness #endo #endobelly #endobellydontcare #endowarrior #endofact #endometriosispain #endometriosissupport #endometriosissucks #endometriosisfighter #endometriosisisreal

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As a teen, Emma felt completely misunderstood.

Nobody would believe that she was in pain, which led her to think, on some level, that she was going crazy.

Because of the pain from her periods, Emma spent a lot of time at the nurse’s office at school. Teachers punished her for “skipping lessons”.

But despite her hidden illness, Emma was a loud, bubbly teen who loved animals and babies. She hoped to have a big family when she was older.

Little did she know that babies of her own might not be something that her body was capable of.

Emma’s pain became worse, and she would spend days in bed, unable to leave the house. By the age of 15, she was desperate for help, so arranged a visit to her doctor.

She was put on birth control, which was supposed to help her to manage her periods and reduce the pain. It did nothing. So she was switched to a different brand of pill. Then again. Then again.

Emma went through more than 10 different birth control pills in three years, while her doctor told her that she just had “a bad period”.

Nobody seemed to be taking Emma’s symptoms seriously, despite how many she had.

Sharing her story on Love What Matters , she recalled:

“I lost an unhealthy amount of weight, I was severely constipated, I always looked six months pregnant, I was unable to eat or drink without pain, my anxiety and depression spiked, and my period pain seemed to never subside.”

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this is real. this is raw. this is an endo flare up. These past few weeks have sent me into a spiral. My anxiety and depression is hitting me much harder being at home and hearing all of this negative news happening around us- sending me into some rough flare ups. My body feels great one moment, then this happens. I’m trying to stay positive and I’ve been practicing yoga and meditation more than ever. It’s important to find what makes you feel good. For me? I use a heating pad almost all of the time, baths are amazing, cbd oil helps and dear god I couldn’t live without Tylenol. Find what makes you feel good to make your flare ups a little more manageable. #endometriosis #endowarrior #endometriosisawareness #chronicillness #endo #chronicpain #hotwater #womenshealth #endosisters #ivf #endostrong #invisibleillness #fertility #endometriosiswarrior #pelvicpain #endosister #endobelly #pain #anxiety #butyoudontlooksick #chronicpainwarrior #endofact

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When she turned 17, Emma approached her physician with some research she had done into Endometriosis. She noticed that a lot of her symptoms matched up, and it seemed to make sense to her.

But her physician shrugged off her suggestion, telling her to stop doing her own research and let the professionals do the job.

Finally, in 2018, a co-worker helped Emma to get to the bottom of her condition.

They put her in touch with a gastroenterologist, who first diagnosed her with IBS. But the diagnosis didn’t quite fit. It didn’t explain the painful sex, fatigue, or vaginal pain.

After a hospital scare followed several unsuccessful trials with IBS medication, Emma sought help elsewhere – this time with her OBGYN.

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Alright everybody! Let’s get personal. Today we’re going to talk about poop 💩 Around the same time I started my period, I started experiencing serve constipation. I would go days, weeks even MONTHS without going to the bathroom. This is even with the help of MiraLAX, senna laxatives, suppositories and prescription medication. For some damn reason I couldn’t poop. My stomach was so full that I couldn’t eat without throwing up. The gastro that I was seeing at the time was no help at all. As I sat there on her table, over a month without pooping with the biggest bloated belly she told me I had IBS and to keep taking my medicine. Then she sent me home to check in with her in a month. The photo above was my stomach after I finally went to the ER. The pink circle, is the poop escaping my stomach and reaching close to my heart. The doctors said that if I had like stayed like this any longer, I could have died. I was prescribed a new medication, and sent on my way. No relief. Fast forward 2 years, and I know that all of my constipation problems stemmed from endo. After my surgery, I learned that my endo was attached to my bowels, my ovaries, my uterus and the sidewalls of my belly. This meant that my organs weren’t able to function the way the should. Ever since my excision surgery, I go to the bathroom regularly. Constipation was something that held me back for all of my teenage years. I was misdiagnosed with IBS, as many women with endo are. I was told that basically there’s nothing that we could do. But all I needed was my diagnoses, and I started finding answers. 💪 💛 #endometriosis #endo #endometriosisawareness #endometriosiswarrior #endometriosissurgery #endotough #tipsendo #constipation #constipationrelief #ibs #endomakeyourselfaware #endohealthhub

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Before Emma had even finished explaining her symptoms, her OBGYN said it sounded like she had endometriosis.

The only way to diagnose endometriosis was to have laparoscopic surgery, so, two weeks later, Emma was booked in.

Finally, the surgery showed that Emma did in fact have endometriosis, and “quite a bit of it”.

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These last few weeks I’ve been having the worst flare up ever. I’ve been trying to stay positive but fuck. This pain is indescribable. My mom finally pushed me to make an appointment for tomorrow with my OBGYN. My original OBGYN was the doctor who performed my laparoscopy. He’s the reason I’ve been hesitant to see another doctor. He told me that my surgery was strictly excision, but when reading through his medical notes, I found that he used ablation too. For those of you who don’t know, excision is removing all of the endometriosis, going deep under the surface to remove it AND ablation is purely burning the surface of the endo, which doesn’t remove it fully. This is the same doctor who when I came in for a visit to explain my ongoing pain after surgery, tried to give me the Lupron shot that day without telling me any of the side effects (look them up if you don’t know- they’re horrible). THEN after telling him that I didn’t want Lupron, he told me that I HAVE to take Oralissa because it’s the only way my pain will go away (which also has horrible side effects). So honestly I’ve very worried to go in tomorrow. I’m seeing a different doctor and hope that the visit will be productive. I honestly feel another surgery coming my way because I don’t trust the doctor who performed my surgery, and I am in worse pain now than ever before. I don’t post this to complain, but to show how manipulative doctors can be in your healing journey. Don’t stay with a doctor who belittles you’re pain, doesn’t listen to you and lies to your face. There are amazing doctors out there that want to help you, you just might have to look a little harder. Fingers crossed for a good appointment tomorrow. 🤞 #endometriosis #endometriosisawareness #endo #endowarrior #chronicillness #chronicpain #chronicpainwarrior #endo #endofact #endopain #endopainrelief #pain #adenomyosis #manyfacesofendo #endotough #endostrong #endoactive #fuckendo #misdiagnosis

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She recalled:

“I learned I had adhesions attached from my bowels to my ovaries, to my uterus and to the sidewalls of my belly. This meant my organs weren’t able to function the way they’re supposed to. It explained why I had such severe constipation—my bowels were kinked and twisted due to the endo. It explained the unbearable cramping and my bladder issues.”

Though Emma’s surgery didn’t automatically cure her, she’s been on a path of self-discovery since her diagnosis. She’s become an advocate for her illness, and hopes to raise awareness about endometriosis so that other young women like her can receive a diagnosis sooner.

You can follow Emma’s journey on Instagram .  More info about endometriosis can be found here .

Please SHARE this with your friends and family.

Source: Love What Matters, Mayo Clinic , Instagram

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